{"id":4796,"date":"2018-06-14T13:24:29","date_gmt":"2018-06-14T13:24:29","guid":{"rendered":"https:\/\/belgianfapa.anmdev.be\/?p=4796"},"modified":"2019-04-08T15:51:48","modified_gmt":"2019-04-08T13:51:48","slug":"pourquoi-un-registre-belge","status":"publish","type":"post","link":"https:\/\/belgianfapa.be\/fr\/pourquoi-un-registre-belge\/","title":{"rendered":"Pourquoi un Registre Belge\u202f?"},"content":{"rendered":"<p>L&rsquo;objectif principal des registres est d&rsquo;am&eacute;liorer le pronostic des patients&nbsp;gr&acirc;ce &agrave;&nbsp;un diagnostic pr&eacute;coce et&nbsp;&agrave;&nbsp;un traitement pr&eacute;ventif.&nbsp;Le&nbsp;d&eacute;pistage syst&eacute;matique et r&eacute;gulier des membres d&rsquo;une famille &agrave; risque&nbsp;de d&eacute;velopper une maladie&nbsp;a &eacute;t&eacute; prouv&eacute; &agrave; plusieurs reprises.<span data-ccp-props='{\"201341983\":0,\"335559739\":160,\"335559740\":259}'>&nbsp;<\/span><\/p>\n<p>Les patients sont mieux surveill&eacute;s si le type&nbsp;et la p&eacute;riodicit&eacute; du d&eacute;pistage sont bas&eacute;s sur des recherches collaboratives et inter-hospitali&egrave;res,&nbsp;aboutissant&nbsp;&agrave; des proc&eacute;dures standardis&eacute;es.<span data-ccp-props='{\"201341983\":0,\"335559739\":160,\"335559740\":259}'>&nbsp;<\/span><\/p>\n<p>Un avantage suppl&eacute;mentaire de la tenue d&rsquo;un registre national est&nbsp;la mise en commun de&nbsp;toutes les donn&eacute;es disponibles&nbsp;et leur mise &agrave; disposition&nbsp;pour&nbsp;des&nbsp;analyses&nbsp;plus approfondies.<span data-ccp-props='{\"201341983\":0,\"335559739\":160,\"335559740\":259}'>&nbsp;<\/span><\/p>\n<p>Le registre permet aux personnes atteintes d&rsquo;une maladie ou d&rsquo;un trouble d&rsquo;&ecirc;tre inform&eacute;es&nbsp;sur&nbsp;la cause et la nature de leur&nbsp;maladie, ainsi que sur les mesures qu&rsquo;elles peuvent prendre&nbsp;pour&nbsp;leur sant&eacute;. Cela am&eacute;liore l&rsquo;implication des patients dans leur sant&eacute;, ce qui a un impact sur l&rsquo;adh&eacute;rence au traitement&nbsp;et sur le bien-&ecirc;tre.<span data-ccp-props='{\"201341983\":0,\"335559739\":160,\"335559740\":259}'>&nbsp;<\/span><\/p>\n<p>Par ailleurs, il existe des registres&nbsp;internationaux&nbsp;de personnes atteintes de tumeurs g&eacute;n&eacute;tiques.<span data-ccp-props='{\"201341983\":0,\"335559739\":160,\"335559740\":259}'>&nbsp;<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>L\u2019objectif principal des registres est d\u2019am\u00e9liorer le pronostic des patients\u00a0gr\u00e2ce \u00e0\u00a0un diagnostic pr\u00e9coce et\u00a0\u00e0\u00a0un traitement pr\u00e9ventif.<\/p>\n","protected":false},"author":39,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"kk_blocks_editor_width":"","_kiokenblocks_attr":"","_kiokenblocks_dimensions":"","footnotes":""},"categories":[84],"tags":[154,112],"class_list":["post-4796","post","type-post","status-publish","format-standard","hentry","category-registre","tag-prise-en-charge","tag-sante"],"acf":[],"_links":{"self":[{"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/posts\/4796","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/users\/39"}],"replies":[{"embeddable":true,"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/comments?post=4796"}],"version-history":[{"count":3,"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/posts\/4796\/revisions"}],"predecessor-version":[{"id":5431,"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/posts\/4796\/revisions\/5431"}],"wp:attachment":[{"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/media?parent=4796"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/categories?post=4796"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/belgianfapa.be\/fr\/wp-json\/wp\/v2\/tags?post=4796"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}